Tuesday, March 3, 2009

My baby is starting school!!





Our sweet little man is starting PPCD in April! We are going tomorrow to have some tests done and to meet with the staff at the school! I know Matty will be great! He is SO sweet and lovable! And SO smart, I can't wait for him to meet new friends at school! I'm going to miss him terribly though! It's only 3 hours, but still he's my baby! I know I've said it a million times, but Matty is by FAR my easiest child! He is sooo loving, and sweet! I will be in the kitchen doing something and he will come in and just hug my leg and make his "Mmm" sound and then walk off...he does it all the time randomly to everyone in the house! Even his Elmo! And his kisses are by far the best! He loves to give kisses and thinks everyone's belly is ticklish! Brian and I keep saying we are done having kids, our family is complete but honestly if the oppertunity came up that a baby with Down's needed a home, I would happily bring them home to join our family! Children with DS just light up my heart! All kids do, I love kids...but there is something about a child with Special needs that I just want to love them and hold them! So, we say we're done...but I do want another child with Down's...maybe a little girl...who knows...it's God's plan after all!

MY BABY, MY ANGEL, Down's Syndrome and All!

THIS LOVELY LADY PUTS THIS PERFECTLY! I JUST HAD TO POST THIS!!!!I get asked ALL the time whether I had "the test." - To this I say no we didn't have the test but if we had known our angel had Down's Syndrome before he was born he would STILL BE HERE! It wouldn't have changed the way we feel about our son, the fact that 90% of women abort because of Down's Syndrome absolutly sickens me! Seriously it makes me want to scream to the world that these babies are PEOPLE! Human Beings that love to laugh, play, dance, have hobbies and emotions, have Families that LOVE them unconditionally! Isn't that what a mother is? Someone that loves you and it doesn't matter whether you are perfect or not? If parents aren't ready to accept the child they are given then they have no right planning on being parents, because guess what NO child is perfect, they may have issues later on in life, does that mean you abandon them then? I think not! This topic really gets my blood boiling....grrrr ok now is that article I really wanted to share! :)Believe me, my Matty is the sweetest child I have ever known! The love he gives is Priceless!




SANTA MONICA, Calif. -- If it's unacceptable for William Bennett to link abortion even conversationally with a whole class of people (and, of course, it is), why then do we as a society view abortion as justified and unremarkable in the case of another class of people: children with disabilities?I have struggled with this question almost since our daughter Margaret was born, since she opened her big blue eyes and we got our first inkling that there was a full-fledged person behind them.Whenever I am out with Margaret, I'm conscious that she represents a group whose ranks are shrinking because of the wide availability of prenatal testing and abortion. I don't know how many pregnancies are terminated because of prenatal diagnoses of Down syndrome, but some studies estimate 80 to 90 percent.Imagine. As Margaret bounces through life, especially out here in the land of the perfect body, I see the way people look at her: curious, surprised, sometimes wary, occasionally disapproving or alarmed. I know that most women of childbearing age that we may encounter have judged her and her cohort, and have found their lives to be not worth living.To them, Margaret falls into the category of avoidable human suffering. At best, a tragic mistake. At worst, a living embodiment of the pro-life movement. Less than human. A drain on society. That someone I love is regarded this way is unspeakably painful to me.This view is probably particularly pronounced here in blue-state California, but I keep finding it everywhere, from academia on down. At a dinner party not long ago, I was seated next to the director of an Ivy League ethics program. In answer to another guest's question, he said he believes that prospective parents have a moral obligation to undergo prenatal testing and to terminate their pregnancy to avoid bringing forth a child with a disability, because it was immoral to subject a child to the kind of suffering he or she would have to endure. (When I started to pipe up about our family's experience, he smiled politely and turned to the lady on his left.)Margaret does not view her life as unremitting human suffering (although she is angry that I haven't bought her an iPod). She's consumed with more important things, like the performance of the Boston Red Sox in the playoffs and the dance she's going to this weekend. Oh sure, she wishes she could learn faster and had better math skills. So do I. But it doesn't ruin our day, much less our lives. It's the negative social attitudes that cause us to suffer.Many young women, upon meeting us, have asked whether I had "the test." I interpret the question as a get-home-free card. If I say no, they figure, that means I'm a victim of circumstance, and therefore not implicitly repudiating the decision they may make to abort if they think there are disabilities involved. If yes, then it means I'm a right-wing antiabortion nut whose choices aren't relevant to their lives.Either way, they win.In ancient Greece, babies with disabilities were left out in the elements to die. We in America rely on prenatal genetic testing to make our selections in private, but the effect on society is the same.Margaret's old pediatrician tells me that years ago he used to have a steady stream of patients with Down syndrome. Not anymore. Where did they go, I wonder. On the west side of L.A., they aren't being born anymore, he says.The irony is that we live in a time when medical advances are profoundly changing what it means to live with disabilities. Years ago, people with Down syndrome often were housed in institutions. Many were in poor health, had limited self-care and social skills, couldn't read, and died young. It was thought that all their problems were unavoidable, caused by their genetic anomaly.Now it seems clear that these people were limited at least as much by institutionalization, low expectations, lack of education and poor health care as by their DNA. Today people with Down syndrome are living much longer and healthier lives than they did even 20 years ago. Buoyed by the educational reforms of the past quarter-century, they are increasingly finishing high school, living more independently and holding jobs.That's the rational pitch; here's the emotional one. Margaret is a person and a member of our family. She has my husband's eyes, my hair and my mother-in-law's sense of humor. We love and admire her because of who she is -- feisty and zesty and full of life -- not in spite of it. She enriches our lives. If we might not have chosen to welcome her into our family, given the choice, then that is a statement more about our ignorance than about her inherent worth.What I don't understand is how we as a society can tacitly write off a whole group of people as having no value. I'd like to think that it's time to put that particular piece of baggage on the table and talk about it, but I'm not optimistic. People want what they want: a perfect baby, a perfect life. To which I say: Good luck. Or maybe, dream on.And here's one more piece of un-discussable baggage: This question is a small but nonetheless significant part of what's driving the abortion discussion in this country. I have to think that there are many pro-choicers who, while paying obeisance to the rights of people with disabilities, want at the same time to preserve their right to ensure that no one with disabilities will be born into their own families. The abortion debate is not just about a woman's right to choose whether to have a baby; it's also about a woman's right to choose which baby she wants to have.



The real price of raising kids....

The real price of raising kids....
Ever since I first heard about the Octuplet mom, everyone's been talking about the price of kids and how much of a burden they are well I have news for those people,The government recently calculated the cost of raising a child from birth to 18 and came up with $160,140 for a middle income family. Talk about sticker shock! That doesn't even touch college tuition. But $160,140 isn't so bad if you break it down. It translates into:· $8,896.66 a year,· $741.3 month, or * $171.08 a week.· That's a mere $24.24 a day!· Just over a dollar an hour.Still, you might think the best financial advice is don't have children if you want to be "rich." Actually, it is just the opposite.What do you get for your $160,140? Naming rights. First, middle, and last!Glimpses of God every day.Giggles under the covers every night.More love than your heart can hold.Butterfly kisses and Velcro hugs.Endless wonder over rocks, ants, clouds, and warm cookies.A hand to hold, usually covered with jelly or chocolate.A partner for blowing bubbles, flying kitesSomeone to laugh yourself silly with, no matter what the boss said or how your stocks performed that day.For $160,140, you never have to grow up. You get to: finger-paint,carve pumpkins,play hide-and-seek,catch lightning bugs, andnever stop believing in Santa Claus. You have an excuse to:keep reading the Adventures of Piglet and Pooh,watching Saturday morning cartoons,going to Disney movies, andwishing on stars.You get to frame rainbows, hearts, and flowers under refrigerator magnets and collect spray painted noodle wreaths for Christmas, hand prints set in clay for Mother's Day, and cards with backward letters for Father's Day.For $160,140, there is no greater bang for your buck. You get to be a hero just for:retrieving a Frisbee off the garage roof,taking the training wheels off a bike,removing a splinter,filling a wading pool,coaxing a wad of gum out of bangs, and coaching a baseball team that never wins but always gets treated to ice cream regardless.You get a front row seat to history to witness the:· first step,· first word,· first bra,· first date, and· first time behind the wheel.and SO many other firsts! Too many to name!You get to be immortal. You get another branch added to your family tree, and if you're lucky, a long list of limbs in your obituary called grandchildren and great grandchildren. You get an education in psychology, nursing, criminal justice, communications, and human sexuality that no college can match.In the eyes of a child, you rank right up there under God. You have all the power to heal a boo-boo, scare away the monsters under the bed, patch a broken heart, police a slumber party, ground them forever, and love them without limits.So . . one day they will like you, love without counting the cost.That is quite a deal for the price!!!!!!!Love & enjoy your children

Late Nights with Matty!




Matty is our little night owl! Every night we put the kids to bed at 8:30, and most of the time we can still hear Matty playing in his bed until 11:00. The other night he was calling for me, so I went up and he wanted to snuggle...Matty is the Best little cuddler ever! He was so cute, kissing my cheek and patting my back with his little head on my shoulder. Then when I would kiss his cheek he would giggle really hard...I wanted Brian to see our little love bug so I took him downstairs where we were watching a movie. ( I usually don't take him out of his room when he does that) So as soon as he saw daddy he dove right for him, and just like that I lost my little snuggler....but he was so cute laying with Daddy that I had to get the camera. I know I'm going to miss nights like these when he gets older!

Thursday, January 8, 2009

Christmas!

Wow, I can't believe it's been so long since I blogged! I forgot my login info for my pages so that's why I haven't bee updating these...Anyways...
Matty is doing GREAT! He is walking around like a pro! His new favorite game is being chased! He runs and laughs so hard that he falls down! Damian loves to chase him and let Matty chase him, Ashlyn crawls behind them going just as fast! It's Hilarious! Matty and Ash are becoming really close, they play together so well! They are more like twins, Matty was evaluated the other day by his therapists and they put him at about an 18 month level so he and Ash are really close to the same age when they play :)
Matty starts PPCD in April, I can't believe he's going to be three soon! I can't imagine my little Matty walking around the halls of an elementary school! Damian's class is actually about 3 doors down, which is pretty cool! Damian is so excited that his baby brother will be at his school for three hours every day! Matty will get all of his therapy at school which will be really helpful! He is still seeing his speech, OT and PT once a week...with the holiday's he hasn't been for a while but I need to get him back into the routine.

Christmas was good this year! Matty got a new Elmo live toy, that thing is so cool! I actually think that Matty and Ash thinks he is real! LOL they play with it all the time! We went to the DS Christmas party, that was alot of fun! We got to meet alot of other kids with Down's and just eat and talk! The kids even got to sit on Santa's lap!...I think Santa was asleep though...he was tired, it was a 22 yr old boy with Down's and he dressed up like Santa and let all the kids get pictures with him! It was so all FUN!


Anyways, thats all I can think of for now...I will try and keep updated on these more :)

Saturday, May 31, 2008

UPDATE FOR MAY! =0)

Well lets see...this has been a very busy month for our little Matty! Good news! No More Button! Yeah! Matthew went in for surgery at the beginning of the month and had the hole closed up! They also did a scope on his tummy and ran ALOT of tests... they think that Matthew has some serious food allergies, while they were doing the scope they found out that Matthew also has Pancreatitis....the Dr said all we can do is watch it closely. A few day's after Matty's surgery we lost Great-Grandma Margie...she was so close with Matthew! I still feel her, when I tuck the kids in at night I can feel her, I think she watches over them....she always said that she wanted to watch them grow up and that was her reason for fighting the cancer and I honestly feel that she will get to watch them grow....

This month has been crazy...to know more visit the family blog.

On a happier note, Matty is doing GREAT he is almost walking! He can walk holding one of my hands now! He is talking up a storm, his new word are; "Tank Too" (Thank you), "Tadie" (Katiy), "Pup" (puppy), "Ditis" (drink) , "Tiss" (Kiss) "Ja Ja" (Jacqui), "Peas" (Please) and of course his favorite I DID IT! Followed with him clapping his hands then throwing them in the air! He is so much fun!! He has really been enjoying playing outside lately, he has a new slide and thinks the grass is pretty neat too! Oh and lets not forget that Miss Jacqui is home, he loves her! I think he prefers her to me actually ;-)
When we are in the front yard and I am holding his hands to help him walk he walks right next door saying "Ja Ja!" , she loves it! It's so wonderful having so many people that truly love our little Matty! You can tell when people truly love your kids and the Moses family definatly love our little ones! I am so glad they live right next door! We honestly have wonderful neighbors, Miss Emma is also one that loves the kids, she lives just a few houses away and she is really sweet with Matty, he likes to give her kisses! Our little Matty is so blessed with people that love him, I am so excited to go to Utah next month...I just know that my family is going to fall in love with him! Everyone that meets Matthew can't help but fall for him, he is just so sweet and charming!

Matthew is flourishing just like he always has, he just gets sweeter and cuter every day!

Sunday, April 13, 2008

Matthew's Birthday!

Our little Matty turned 2! We had a blast at the party, I told everyone to dress up silly! Everyone dressed up and had alot of fun! We grilled out, played Twister, and just had a blast playing with Matthew! He loved being the center of attention and thought everyone looked so funny with their crazy hair, hats and glasses! We are so proud of our little Matthew, he is just a blessing to our entire family! I have said it before, I would not change one thing about my extra special little man! I just Love him to Pieces!
 
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